Showing posts with label gluten. Show all posts
Showing posts with label gluten. Show all posts

Wednesday, May 28, 2014

Zero Tolerance for Gluten!

Please understand if I don't eat something when I'm visiting with you it isn't meant as an insult. I can't go ahead and try something just because it doesn't have any obvious gluten ingredients, or even if it says gluten free but ends up surrounded by/prepared with foods containing gluten. Please please please understand I have Celiac Disease (CD), I will have it the rest of my life, and yes even a tiny bit will make me sick. 

You might be thinking, "so you'll have a tummy ache or some gas or diarrhea, we all have that from time to time." Please try to understand that for me, and the many others with Celiac Disease, ingesting even the tiniest bit of gluten begins a war inside my body, sending signals of attack to the critical villi inside the intestines. Often gluten intake, for me, results in fiery pain throughout my entire body--every joint, every muscle, every inch of my body from head to toe, inside and out. Sometimes the attack takes place in my nervous system, triggering anything from panic attacks to exhaustion to a general "brain fog". This is why CD is considered an autoimmune disorder. A basic autoimmune disorder definition from NIH.gov:
...problems with your immune system cause it to mistake your body’s own healthy cells as invaders and then repeatedly attacks them. This is called an autoimmune disease. (“Autoimmune” means immunity against the self.) 

Celiac Disease can make me feel like a hypochondriac; the main reason I might feel that way is because society just can't seem to accept that Celiac Disease is real. The masses of people going to restaurants asking for gluten free foods and adding "can you just bring me one roll instead of the whole basket, because I'm limiting the amount of gluten in my diet" are just that, they are on a diet. Unfortunately with so many people doing this, too many take that as the attitude in general of anyone that says they can't have gluten. While yes, I've made the choice to eliminate gluten from what I eat I must eliminate gluten entirely from my what I eat to regain and maintain my health. 

If you have questions, ASK ME! I'm learning as I go because it just isn't as simple as "no wheat". One of my favorite bloggers Gluten Dude has this entry that helps to express some of the frustration when given the CD diagnosis Here's a short excerpt: 

...Who cares if this 21 year old has joint pain? It’s just inflammation, take it easy, take some more pills, and it will go away. I got labelled a hypochondriac. I was making it up.
Then, about 3 months ago, it was as if my body just gave up. I had no energy to do anything. I was anxious all the time, and I was hospitalized for severe inflammation in my chest that had me on bed rest for 2 weeks. Then I started getting ‘actually’ sick. In a way that counts, I guess. Up at 3 am, going to the bathroom every 20 minutes. Getting incredibly nauseous after eating. I lost a lot of weight in a very short time period. ... I was told I have Celiac. That I can’t have gluten. That I probably inherited it. [Read the entire entry HERE]
Here's a pinterest graphic that caught my attention this morning. Remember, if you have questions just ask. To get to the original graphic, click HERE and/or to read the original Gluten Dude entry that inspired the graphic, click Gluten Dude: Here is Why I Eat Gluten Free




Friday, March 28, 2014

Celiac Disease is FAD-free!

"Whether your choice to live gluten free is driven by the desire to lose weight, comply with a celiac diet, the need to avoid wheat because of mild allergies or the suspected link between gluten and autism,"




This part of a gluten free cookbook description irked me...why? Because the fad dieters (who give those with a medical reason to be gf a bad name) are listed first. 


I get it, it's all about the almighty dollar, which would explain why gf products are so expensive; all these people jumping on the gluten free bandwagon are willing to pay to play, while those of us with no other health choice can't afford it. Yes, it is a double edged sword on that products are more readily available, but at what price-both literally and figuratively to the quality of the food and the dismissal of those diagnosed with celiac disease as using the latest diet-du-jour. 




Tuesday, November 19, 2013

Gluten Free and...BLAH

Once I post this, I'll brace myself for the backlash of naysayers and know-it-alls. I am two weeks gluten free and I feel..................NOT SO GREAT. I got my positive antibodies celiac panel results on October 29.

What is wrong with me? Article after testimonial after face-to-face after interview says, "you will feel amazing within a few day of being gluten free." I waited. I stuck with it. I ate fresh vegetables each day, made my own bread, and pizza dough, and even delicious chocolate chip cookies. I switched from my regular Cheerios to Chex. Not only do I not feel better, I feel worse, with a steady weight gain and feeling an overall sense of dragginess. I'm swollen more and my aches have increased, and I am not sleeping well, I'm foggy and emotional. I have not had one AHA moment. I just feel worse.

I'm frustrated and angry. People assume I'm just still eating junk food because I joke about it so much and because, well, I tend to be a snacker. (I can hear some people laughing right now at the minimization of that statement--oh, shut up!) I am screaming from the rooftops here, I HAVE BEEN EATING HEALTHY FOODS and NO gluten, save for 1 lone flour tortilla and a bowl of Cheerios about a week ago. This was supposed to be the Hallelujah choir awakening of my hidden, feeling better, self. I never expected to feel worse.

From all the reading I have been doing, and knowing my own body, I think it is safe to assume there are other foods I am reacting to. I know I have always had problems with corn and am just realizing there is some sort of corn (flour, meal, starch) in many things I've been eating recently. Sure, I could try to eliminate that as well; unfortunately I think there are others.  With 2 kids still in the house that are not gluten free, I don't see how I could practically track it all down. I'm not meaning to sound like a martyr (although isn't that my role as a mom??), I just don't feel that I can do this on my own, and continue to feel worse and wait up to 6 months to start feeling better.

I will continue to research and hope to find answers. I see a rheumatologist next month and hopefully that will narrow the possibilities into what is going on inside my body. Hey, I know what I need: OSMOSIS JONES! MAGIC SCHOOLBUS!! Hey Miss Frizzle, figure this out for me!

I am taking this seriously, trust me I want to feel better. I just don't see how this particular path is going to "work" right now.